Real People, Real Stories
Clinical trials can change lives! Here, we feature stories of people that have participated in clinical trials – why they decided to consider a trial, what were the most important aspects for their consideration, how they discussed it with their doctor and family, and the effects it had on their lives. We also feature stories from individuals who support clinical trials to get their perspective on why trial participation is important and what makes them want to work in this field to bring new treatments to those that need them.
Incorporating Patient Voices: Leah Eshraghi’s Mission to Enhance Clinical Trials through Advocacy and Inclusion
Leah Eshraghi champions patient advocacy at Exact Sciences, integrating patient voices into every phase of clinical trials to foster inclusivity and relevance. By involving diverse patient advocates early, Leah’s team ensures trials address real patient needs, creating studies people want to join. “It all comes down to including the patient voice from the beginning,” she emphasizes.
Empowering Clinical Trial Participation: Brooklyn Olumba’s Journey and Insights on Access, Advocacy, and Representation
Brooklyn Olumba joined the RadComp clinical trial during her cancer treatment, highlighting both the personal benefits and the power of contributing to future therapies. She encourages others, especially those from underrepresented groups, to consider clinical trials, asking, “Why take medicine that hasn’t been studied in someone like you?”
LaToya Hinton is the CEO and Research Director of NEXT Innovative Clinical Research
LaToya compares her efforts running a clinical research site to being a conductor of a great symphony. As a site owner, she is responsible for identifying locations, onboarding physicians, training staff, and supporting all stages of the studies that take place at her sites
Michelle Anderson-Benjamin is a Tigerlily ANGEL and fierce advocate in the breast cancer world.
Having triple negative breast cancer (TNBC) and being PD-L1 negative, Michelle knows that she’s got limited options for treatment, especially when it comes to immunotherapies. By participating in a clinical trial examining different chemotherapies, she’s able to expand the options that are available for her specific diagnosis – and contribute to the development process for these treatments that allows them to be made available to other people just like her in the future.
LaTisha Weaver is a Clinical Budget and Contract Negotiator with a game plan
Like many people in their current positions, LaTisha moved in to her analyst role after life threw her a 180. As a parent, she had been laid off from her previous role and was able to get a new position with a central laboratory organization that provides lab services for clinical trials.
Allanda Christenson wants to share just how important the power of advocacy – especially self-advocacy – can be.
While we often think about clinical trials as a way to compare whether a potential new treatment is as good or better than other current treatments, there are a lot of other types of clinical trials available.
Finding My Purpose – Dr. Lisa Treviño, PhD
If you had asked me over 30 years ago if I would be doing what I’m doing now as a career, I think I would have done an about-face and said “What? No way!”. Actually, I believe there is footage where I was asked, “Lisa, where do you see yourself in 10 years”? I think I responded with, “I want to be traveling the world!” While I have done some traveling, it is probably not what I was envisioning at the time.
Shakisha Davis
Shakisha Davis is an active Tigerlily Foundation ANGEL Advocate that wants to highlight her experiences with the power of advocacy – especially when it comes to advocating for one’s own health.
Dr. Lovie Negrin, APRN, FNP-C, AG ACNP
In her daily efforts, Dr. Negrin is a double board-certified clinical research nurse practitioner working in both acute care and family medicine. Having seen low participation from racial and ethnic minority communities compiled with a lack of diverse representation in medical staff overseeing clinical research efforts, she switched gears from an academic/institutional environment to open a community-focused clinical research site called Randomize Now.